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Hospice and Palliative Care

Hospice and Palliative Care are medical approaches focused on quality of life in the dying process.  The resources listed here can help demystify both Hospice and Palliative Care and offer guidance and education about these end-of-life options.

Global Resources

Title Type Description Tags
End of Life Article by Clay Evans, Part 1 of 3 parts Boulder Daily Camera columnist Printed Materials Good article - this is the first of a series of 3 articles, mainly dealing with advanced directives and the issues that occur when they are not followed. Click here to visit the resource page.
End of Life Article by Clay Evans, Part 2 of 3 parts Boulder Daily Camera columnist Printed Materials 2nd in a series of 3 articles on Death and Dying. This part covers more detail about advance directives. Click here to visit the resource page.
Knocking on Heaven's Door by Katy Butler Books and Audio In this visionary memoir, based on a groundbreaking New York Times Magazine story, award-winning journalist Katy Butler ponders her parents’ desires for “Good Deaths” and the forces within medicine that stood in the way. Katy Butler was living thousands of miles from her vigorous and self-reliant parents when the call came: a crippling stroke had left her proud seventy-nine-year-old father unable to fasten a belt or complete a sentence. Tragedy at first drew the family closer: her mother devoted herself to caregiving, and Butler joined the twenty-four million Americans helping shepherd parents through their final declines. Then doctors outfitted her father with a pacemaker, keeping his heart going but doing nothing to prevent his six-year slide into dementia, near-blindness, and misery. When he told his exhausted wife, “I’m living too long,” mother and daughter were forced to confront a series of wrenching moral questions. When does death stop being a curse and become a blessing? Where is the line between saving a life and prolonging a dying? When do you say to a doctor, “Let my loved one go?” When doctors refused to disable the pacemaker, condemning her father to a prolonged and agonizing death, Butler set out to understand why. Her quest had barely begun when her mother took another path. Faced with her own grave illness, she rebelled against her doctors, refused open-heart surgery, and met death head-on. With a reporter’s skill and a daughter’s love, Butler explores what happens when our terror of death collides with the technological imperatives of medicine. Her provocative thesis is that modern medicine, in its pursuit of maximum longevity, often creates more suffering than it prevents. This revolutionary blend of memoir and investigative reporting lays bare the tangled web of technology, medicine, and commerce that dying has become. And it chronicles the rise of Slow Medicine, a new movement trying to reclaim the “Good Deaths” our ancestors prized. Knocking on Heaven’s Door is a map through the labyrinth of a broken medical system. It will inspire the difficult conversations we need to have with loved ones as it illuminates the path to a better way of death. In Colorado library
Life Before Death - Collection of Films about living well and dying better Movies HOW WILL YOU DIE? LIFE Before Death is a multi-award winning documentary series that asks the fundamental question underpinning our mortality. This beautifully filmed journey takes us to 11 countries as we follow the remarkable health professionals battling the sweeping epidemic of pain that threatens to condemn one in every ten of us to an agonizing and shameful death. Through the eyes of patients and their families we discover the inherent humanity that empowers the best of us to care for those beyond cure. This is an intimate, hopeful and life-affirming story of living well and dying better, advocating for making the most of every moment in our life before death. Click here to visit the resource page. DVDDocumentary
The End of Life Advisor - by S Dolan & A Vizzard Books and Audio In this simple guide, you’ll find both practical step-by-step advice and compassionate, heartfelt guidance to dramatically improve the last days of life. Written by a mother-daughter team of hospice volunteers with experience in nursing, law, and psychology, The End-of-Life Advisor will show you the remarkable benefits of hospice care. If you’re a healthcare or legal professional, you’ll discover the important ways you can advise your patients and clients. If you’re caring for a loved one, you’ll learn how you can help make their last days much more comfortable. If you’re planning for yourself, you’ll understand the decisions you need to make now – so you can find greater peace down the road.

US Resources

Title Type Description Tags
American Hospice Foundation Organizations This is the main website for Hospice in the US. Includes caring and support for dying and grieving people of all ages. Click here to visit the resource page. Non Profit Organization
Dying Shouldn't Be So Brutal - article in NYTimes Printed Materials Article in New York Times about Hospice Care and issues surrounding a terminal illness. The question of whether a person who is receiving treatment, perhaps an experimental treatment, should be allowed to enter Hospice and Medicare rules surrounding that issue. Click here to visit the resource page.
Learn About Hospice & Palliative Care by Evercare Hospice Movies In this video you'll learn more about hospice and palliative care, hear personal stories from people who have first hand experience with Evercare Hospice, find out more about what makes Evercare Hospice special. This is a private company but we consider this to be good information. DVDIn Colorado library
Palliative Care - Center to Advance Palliative Care Organizations This site is dedicated to palliative care and promoting the technology and use of it when necessary. This organization accepts donations and members. Click here to visit the resource page.

Colorado Resources

Title Type Description Tags
Colorado Center for Hospice and Palliative Care Organizations This is a "for profit" group whose mission is to promote palliative end of life care. Possibly useful. Includes a power point presentation introducing Hospice Care. Also information of advance care planning and directives. Click here to visit the resource page.
Hospice Care Online Organizations This is a site dedicated to Hospice Care specifically for Boulder County. Click here to visit the resource page. Non Profit Organization

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